Ep. 3 - Interview with Ruth Landsman - Parent / Advocate

Subtitle: Having the Tough Conversations

Recording Date: April 29, 2022

Transcript: Download transcript HERE

Keywords: Estate planning, special needs trust, difficult conversations, caregiver, caregiving, independent living, birth of a child with a disability, special education, The Parents' Exchange,

Summary: Gerry interviews Ruth Landsman, executive director of Parents' Exchange, and advocacy group for parents of children with disabilities. Ruth shares her journey from learning of Mitchell's disabilities, to her conscious planning for a future for Mitchell without her. Ruth shares the exploration of difficult conversations, and the importance of having those conversations earlier rather than later.

Topical Index:

• Overview [00:00]
• Introductions [02:18]
• Pregnancy and birth [02:45]
• The changing vision [03:47]
• Connecting with other parents [05:55]
• Transition [07:43]
• Continuity of housing and supports [10:07]
• What happens when I am gone [12:30]
• Preparing a letter of intent [15:17]
• Starting the shift of support now [16:36]
• Financial planning [17:57]
• Mitchell's apartment [19:23]
• Regret of missed milestones [24:27]
• We have moved [25:56]
• Have the conversation / Ask the questions [27:32]
• Plan now for the future [29:19]
• Closing [31:48]

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